I have a headache and I’m coughing and stuffy. It’s either a cold or heyfever. Choices, choices.
Anyway, I’m whiling away my time reading, as usual now I’ve sent in another email with my dissertation, and today’s choice is one of my book shopping spree purchases: Odd Girl Out, by Laura James.
Reading it, I’ve found so many things, thoughts, feelings, that I recognise. That I’ve felt or experienced, despite our different backgrounds and upbringing. The oddness of other people, not understanding the social rules, being immersed in books, not understanding the whole football thing, practical empathy, being overwhelmed by other people’s feelings, especially negative feelings, not quite getting why people lie, there’s so much!
She talks about the irony of an autistic woman in a communications profession – she’s a journalist. Communication deficits are a hallmark of autism. The fact is, we communicate well in writing. I prefer to write than talk, because I can be very precise in writing. I mean what I write. There’s no need to assume otherwise. If I’m being satirical, humorous or sarcastic I can indicate that either directly with a symbol, or with the sentence structure. It’s also solid, I have information in writing, so I can refer back to it if I get confused or need reassurance. Or to win an argument.
Speech is different. If I say something, other people have a habit of deciding the meaning based on my face or body language, rather than the actual words used. My face does not always show my feelings. My words get jumbled up if I’m stressed or answering an unexpected question. I can’t always hear and process speech. I forget what’s been said or what I’ve said. Sometimes. Beware, I also have the ability to recall conversations from months or years ago with accuracy. Sometimes I lose the ability to speak, especially under stress, or if I’m heading into a shutdown. It’s very frustrating.
So, because autists have problems with verbal communication, our ability to communicate at all is written off as deficient. This attitude keeps the non-speaking from being given any respect at all, and those of us who do speak are told we’re too good at communicating to actually be autistic when we go for a diagnosis. It’s not just doctors either, when autistic people advocate for themselves they get push back from certain people – they can’t possibly be autistic if they can write a tweet. *massive eye-roll* Or they must be ‘high functioning’ and don’t understand the experience of ‘low functioning’ people. Almost invariably, when asked what they mean by ‘low functioning’, not speaking is included in the criteria. *again, eye roll*
Just because there’s a block between mind and mouth doesn’t mean there’s a block between mind and hand, or low intellectual ability, or low competancy. People need to stop assuming speech is the only valid means of communication. Give people the means to communicate and actually read what they’re saying.
Right, now I’ve got that off my chest I’m going back to reading my book.
Everything Is Better With Dragons 